Links and Resources
Sites with helpful information for persons with sickle cell disease:
Sickle Cell Disease Information
- Black Health Care.com
- Clinical Trials for Sickle Cell Disease
- Federally Funded Comprehensive Sickle Cell Centers
- Management and Therapy of Sickle Cell Disease
- NIH National Heart, Lung and Blood Institute
- Sickle Cell Advocates for Research and Empowerment
- NORD - Sickle Cell
- OMIM - Sickle Cell
- Sickle Cell Disease Association of America, Inc.
- Chest Syndrome With Sickle Cell Disease
- PAIN in the child with Sickle Cell Disease
- Pneumococcal Infection and Penicillin Sickle Cell - WA State Dept. of Health
- Sickle Cell Anemia and Stroke
- Sickle Cell Anemia: A Parent's Guide for the School Age Child
- The Infant and Young child with Sickle Cell Anemia
- Ethnicity and Screening for Sickle Cell/Thalassaemia book by Simon Dyson (May, 2005)
- Medline Plus http://medlineplus.gov/
- National Institutes of Health http://www.nih.gov/
- Nemours Foundation http://www.Nemours.org
- Mayo Foundation for Medical Education and Research http://www.mayoclinic.com
- National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/
- National Heart, Lung, and Blood Institute http://www.nhlbi.nih.gov/
- American Academy of Family Physicians http://www.aafp.org/
- National Human Genome Research Institute http://www.nhgri.nih.gov/
- March of Dimes Birth Defects Foundation http://www.marchofdimes.com/
Health Programs
- Social Security http://www.socialsecurity.gov
- Medicaid http://www.lamedicaid.com
- LSU Medical Center http://www.lsuhsc.edu
- Genetic Disorder http://www.dhh.louisiana.gov
- http://www.lightenuplouisiana.org/
- Louisianna Department of Health
- Medicare Rx plans
- Need Insurance?
- Centerpoint http://www.centerpt.org
- LSUHSC Sickle Cell Center of Northwest Louisiana (318) 813-1100
(318) 813-1100
Federal Resources